Four Sayings You Should Never Say To Someone With Fibromyalgia
1. “You are too young to be disabled.”
Actually, no I am not. I may be 21 years old but I have been diagnosed with fibromyalgia and rheumatoid disease. Obviously I am not “too young” to have major chronic illnesses that has changed my life forever. So no, I’m not “too young” to be in unbearable pain.
2. “Just wait till your my age. Then you will truly feel pain!”
I can’t stand for more than 2 minutes. I use a wheelchair. I am applying for disability. I am in unbearable chronic pain, every minute, of every day. So actually your “getting older” pain is NOTHING compared to someone who has been diagnosed with a chronic illness.
3. “You are so young! You can do things again.”
Yes, I am young. But no, I can never do theatre, golf, or singing standing up again. I can’t stand for more than 2 minutes at a time. Because if I stand for more than 2 minutes, my back will give out and I will start to cry because I am in severe pain.
4. “Have you tried exercise?”
Yes and it makes everything worse. I used to do physical therapy but I would hurt so bad afterwards I would come home and cry. I would be in pain for days after. So yes I have, but I can’t.
If someone you love has a chronic illness, THERE IS NO CURE.
Just be there for them and love them.
We don’t need your advice, just love and be there for us!